Stories

Looking Back to Where I Got “The Call”

Sunday 11-27-16 My friend took me to a christmas performance downtown and We decided to have some lunch before heading home.  We tossed around a few places and she suggested Sauce.  I immediately thought of the location that used to be my office and was now converted to the restaurant.  There is a  BOFA  branch…

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The Night Before My First Brain Surgery – 18 Years Ago

18 yrs ago tonight I would await  my first brain surgery to take place bright and early in the morning.  Micheal and I  stayed at Hilton Suites  near the hospital to make sure we were set for success in the morning. That evening I sat writing notes & cards for all my friends & family…

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Iris W Kirk Gone 24yrs and Missed More Than Ever

Today is a bitter sweet TONGUESATTUMORS TUESDAY it marks 24yrs since I watched my grandma’s death by a brain tumor. It would be her passing from such a horrific disease that would spark my passion to be a voice for the BT cause. The bigger piece to this moment in time would be- 24 years…

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What We Do Wednesday

#whatwedowednesday Part of our mission is to encourage those battling brain tumors. One way we do this is after surgery Lanette personally delivers a blanket. If you don’t live locally we put together a personalized box of goodies to create a smile and send your way. Look at a donation we received to help with…

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Banking, Bagels, and Brain Tumors

Banking Bagels and now Brain tumors.    Gene Snyder was my client,  my friend and now a brain buddie.   I met Gene when I worked at a bank.  We laugh now but it was not funny back then.  His very stern voice scared me.  Really the truth  he wanted you to know he meant…

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Sheryl Shetsky aka BT DIVA founder of FBTA

  Today is about My friend, my Brain buddie, Sheryl Shetsky AKA BT DIVA.  She is a   survivor of almost 30 years  diagnosed with a CEREBELLUM BRAINSTEMGLIOMA in 1989.  She tells her story best so here is her link and it is a must read. http://www.floridabraintumor.com/about.htm Our friendship began when my husband and I…

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David M. Bailey his story continues to share HOPE

David M Bailey my friend, my brain buddie, aka THE DYE HIPPIE FOLK SINGER , HOPE GUY I attached a link to his personal story if you haven’t taken the time to read you need to. DMB “My friend” I met him in 2000 at a NBTF event and after hearing him sing “ONE MORE…

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30yr Medulloblastoma Survivor brainbuddie Steve Westerhoff

Today we want to tell you about Steve Westerhoff.  Steve is a 30 year survivor of Medulloblastoma.  He was diagnosed  in 1987 with a pediatric brain tumor while attending college.  He explains that being told he had a brain tumor caused some life changes.  Steve endured surgery and radiation down his spine.  He and his…

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Grandma, the neurosurgeon, a tree and me…a story of coincidences and love

I’m so pleased to be given the opportunity to share this story in International Brain Tumour Alliance’s annual magazine, “Brain Tumour.” I got the chance to share this story about my neurosurgeon after sharing it in conversation. This is a story about a grandmother, a wonderful neurosurgeon, a tree and me… Click here to subscribe…

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in memory of Beth Glassman ( ORIGINALLY POSTED 2008)

There are times in people’s lives when they hit the abyss. When things look so incredibly bleak and you feel that you will never dig yourself out. Last year I faced the abyss and Lanette, with her kindness and love and infectious spirit helped drag me out of the abyss, here is my story.

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