Stories

Jack Orler is his name

I met a lady while volunteering on the Pediatric Ride for kids. This was over 15 years now.  She  asked if I spoke to families with adults that had brain tumors.   I said of course and the story began.  She asked if I would reach out to her hair dresser who was just diagnosed…

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Meet my friend Matthew Fullerton

Today I want you to know about my friend Matthew Fullerton. He will celebrate 30 years surviving GBM.  I think His tells his survival  story best here is that link https://virtualtrials.com/survivematt.cfm I met Matthew at an event in 2000 but would not really become friends until attending the Florida Brain Tumor conferences EVERY YEAR  from 2001…

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Carson is his name: baby to big boy BT SURVIVOR!

Baby Carson is the youngest GMFbrainbuddie.   His family and I  connected the very first time we met. The story started  when I watched CBS5 news and their pay it forward story. I then reached out to the family and started speaking with Carsons Uncle Nick. I shared how GMFoundation mission is to encourage and…

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Kris from TAMPA

Kris is her name and  Tom  was her husband.  I never met Tom in person but I did through Kris.  You see a loved one can always be kept alive in memory if you share their story.  Kris shared his story and Tom is part of the journey.  Caregiver journeys are part of the awareness…

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You mean I was not the only one?

Lanette’s Little Bit’s I attended my very first conference in California hosted by the National Brain Tumor Foundation in 2000.  ( NBTF is now NBTS they merged a few years back)  It was a whole weekend filled of information.  I arrived on Friday morning and Friday evening it began.  They had an introduction and explanation…

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Thankful Thursday

THANKFUL THURSDAY:  I can’t thank @E Joyce Rend Webb enough.  She was the brain buddie  who requested I be featured in the Card Maker Magazine back in 2011. The really cool part of this story was she’d  been making and donating cards to the foundation in memory of her dear friend  who had passed from a brain tumor…

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#drinkonefordavid

I write this post to wish my beloved brain buddie  a HAPPY 50th BIRTHDAY.  A recent post on his fan page encouraged followers to share stories of times you may have shared a cup of coffee with david.  This sparked an idea to celebrate his life lived. Perfect I thought it’s his birthday and a…

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When you listen do you hear?

This IF ONLY FOR ONE  took place Friday Jan. 29 2016.  I had a pretty busy morning starting with a meeting at BNI .  I always try to maximize my time when at the hospital,  today  wasn’t any different.  I was able to visit #babycarsonsdaddy, great news he is moved back to a regular room…

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My Medical "IF ONLY FOR ONE"

AS MOST OF YOU KNOW:  My true brain tumor journey started in 1992 when my grandma was diagnosed and in 9 wks died. My grandma was my first IFONLYFORONE. More about that on my website under my story.   This BLOG  is about my  MEDICALIFONLYFORONE.  It never occurred to me to count the one who…

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It's more than "just" a chair to me

My amazing relationship and bond with my Grandma  Kirk started many years ago.  I am her second grandchild of 9.  I can recall visits as  a young child to her home when she would baby sit.  I of course remember visits and holidays  like when my parents took us to her neighborhood to trick or…

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