In November, Lanette had the opportunity to attend the 19th Annual Scientific Meeting and Education Day of the Society for Neuro-Oncology presented by the Society for Neuro-Oncology. During the event, she was able to witness the unveiling of some exciting news! For the first time, it was announced that doctors have discovered a new treatment plan for patients with glioblastomas.
Doctors have created a device that glioblastoma patients can wear on their heads. Patients place the cap on their scalp and wear it constantly. The device provides low intensity electrical fields that stop tumor cells from dividing. Patients who received the treatment lived three months longer on average! Although this is not a cure, that is an amazing step forward in providing patients with more time with their loved ones. After the success of the treatment for glioblastoma patients, doctors are considering other applications for the device.
Below are pictures from the conference provided by Chris Tee from the International Brain Tumor Alliance. The New York Times published an article on the new treatment, click here for the full article. Have questions? Need support? Contact Lanette at firstname.lastname@example.org or 623-205-6446.
Here is Lanette’s take on the exciting weekend!
“My trip to Miami was action packed. Always nice to see those I know and it was great to catch up. Funny when you have to fly to another state to catch up with those that live in the same state. I met up with my good friend and BESTIE BRAIN BUDDIE Sheryl Shetsky President of Florida Brain Tumor Association aka “BRAIN TUMOR DIVA”. We used this opportunity to connect with the medical community and put a face to our organization. Our goals were to share what we do in the brain tumor community with those we didn’t know( educate them of our mission statements which are very different) #2 remind those who do know us that we are still ALIVE “SURVIVING” and remind them we are here to support any of their patients and families. Of course Sheryl’s FBTA raises money for research so her conversations were a little different but we both did what we do best. A big part of attending events like these is to learn lot’s so we can stay ahead of the tumor. What that means is: NEVER CHASE YOUR TUMOR!!!!
Sheryl taught me in one of the first conferences I attended stay ahead of your diagnosis. Never wait for the reoccurrence to start survival search. Stay ahead of it know what’s out there. What are the new and up and coming treatments-technology. What docs are doing what. Well we followed her rule and did just that. We attended the education day and even participated in some lunch break out sessions. Of course this is a doctor and researcher event so some of it was over my head FOR SURE! Over all good things are happening in the world of brain tumors A LOT with GBM’s. The most moving breakout session for me was Neuro Oncology Caregiving. What Do We know and Where Should We Go? Obviously if you know anything about GMF you know this is my heart.
This year’s attendance at SNO I met and established what I am hopeful will be some long lasting friendships. We attended the welcome reception where we had the chance to catch up with Sheryl’s good friend, board member and moderator for FBTA conferences Dr. Steven Brem and his wife , we also met with Arizona’s very own Michael E Berens from TGEN and his wife. I even shared photo’s on our fan page of some of the researchers who think BRAIN TUMORS STINK! Lastly and a worth mentioning “IF ONLY FOR ONE” (I had so many but this is the best ) The Gala was on Saturday and over 300 attended. It was held at the Perez Art Museum it was TOP NOTCH! We could sit where we choose it was a nice outdoor event moonlight just beautiful. The table is a ten top. We are chatting with several of the people at our table and one of the people at the table is the President and CEO of a company that develops oncology drugs. The IF ONLY FOR ONE PART. So we are talking about longevity and how Sheryl is 25 years out with a brain stem glioma and me with Grade 3 Aniplastic Oligo. We talk about GBM buddies and of course I honored my beloved sweet friend david m bailey. This man lives in the same small town david lived in. He starts to tell us how when they invested in this “brain” treatment people started talking about a young man who had lived with a brain tumor yadda yadda. Well Ta DA, I honored my promise. I was able to share the legacy of my sweet friend. I put a face to the young man who was the man who shared hope through word, song. Funny how these things work. I attended my first SNO conference when I managed David’s tours, and would only see him at FBTA conferences. I think our one was not seen but was still close at heart. We had a great weekend.”