Posts Tagged ‘brain buddies’

Twenty year TUMORVERSARY

Today I celebrate 7300 days since my very first brain surgery ( I have had 5)! I have had some amazing days and my share of not so amazing days. The most important take away is I was given days others with brain cancer did not get. I don’t take that for granted.   So…

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Senator John McCain’s Death from Brain Tumor Triggers Sadness

After learning of Senator McCain’s passing yesterday, it triggered reflection and some sadness.  Let me explain. I love encouraging and sharing support. I believe it is what I was created to do, however this calling comes with a price. When you help those who are living with a disease that has no cure building relationships is…

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You learn who your friends are

I made a hospital brainbuddie visit.  The patient learned the GBM has possibly returned and  she needs surgery to determine if its treatment effect or tumor.   I brought a few goodies and some items to brighten the room.  I decorated the room engaged in conversation and then!    Bless her heart the tears and…

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There was support! I was not alone.

It was my honeymoon weekend that we attend our first brain tumor support group together. It was the 2001 Florida Brain Tumor Association conference. In 2000 I attended a BT conference in CA. It caused me to want more. At that event, I heard this GBM survivor named David M Bailey sing a song called…

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Stinky monkey feet

. My car has a leak UGH! Arrived at dealership checked in and started my wait. My “IF ONLY FOR ONE” begins. I see this little boy who I now know is Max. He was hanging out with his mom and her boyfriend. The room is large but filled with lots of customers ready to…

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Keeping Record

If you have followed my journey, or if I have visited you on your journey you know I am an advocate for keeping your records. Having your medical information within reach is vital. I suggest creating 2 books one for you and a backup for a caregiver. Maintaining medical records makes it easier to provide…

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19 Years Ago Brain Surgery Began

It was the morning of 9-2-98 Micheal drove me to Barrow and we checked in to pre-op. Some things you never forget.  My dad had given me a shirt that said don’t forget your dad loves you and it had his photo on the front so I made sure I was wearing that so he…

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How Can You Help? Donate Stamps and Stickers

In an early blog we mentioned  Red Mtn Highschools Bio Tech club called Stem created a BRAIN TUMOR AWARENESS and fundraiser campaign for us.  We want to open this for Public participation. The Gray Matters foundation is a nonprofit organization created to support and empower brain tumor patients and their loved ones through encouragement and…

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Students Create Campus Brain Tumor Awareness Campaign

May is Brain Cancer Awareness month & the Biotech Club at Red Mountain High school has teamed up with the Gray Matters Foundation to help STAMP out Brain Cancer.     The Gray Matters foundation is a nonprofit organization created to support and empower brain tumor patients and their loved ones through encouragement and personal outreach.…

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