Posts Tagged ‘brain buddies’

There was support! I was not alone.

It was my honeymoon weekend that we attend our first brain tumor support group together. It was the 2001 Florida Brain Tumor Association conference. In 2000 I attended a BT conference in CA. It caused me to want more. At that event, I heard this GBM survivor named David M Bailey sing a song called…

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Stinky monkey feet

. My car has a leak UGH! Arrived at dealership checked in and started my wait. My “IF ONLY FOR ONE” begins. I see this little boy who I now know is Max. He was hanging out with his mom and her boyfriend. The room is large but filled with lots of customers ready to…

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Keeping Record

If you have followed my journey, or if I have visited you on your journey you know I am an advocate for keeping your records. Having your medical information within reach is vital. I suggest creating 2 books one for you and a backup for a caregiver. Maintaining medical records makes it easier to provide…

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19 Years Ago Brain Surgery Began

It was the morning of 9-2-98 Micheal drove me to Barrow and we checked in to pre-op. Some things you never forget.  My dad had given me a shirt that said don’t forget your dad loves you and it had his photo on the front so I made sure I was wearing that so he…

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How Can You Help? Donate Stamps and Stickers

In an early blog we mentioned  Red Mtn Highschools Bio Tech club called Stem created a BRAIN TUMOR AWARENESS and fundraiser campaign for us.  We want to open this for Public participation. The Gray Matters foundation is a nonprofit organization created to support and empower brain tumor patients and their loved ones through encouragement and…

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Students Create Campus Brain Tumor Awareness Campaign

May is Brain Cancer Awareness month & the Biotech Club at Red Mountain High school has teamed up with the Gray Matters Foundation to help STAMP out Brain Cancer.     The Gray Matters foundation is a nonprofit organization created to support and empower brain tumor patients and their loved ones through encouragement and personal outreach.…

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Brain Buddie Survivor Story: John Van Wagner

My name is John Van Wagner and May 30th 1995 after an 8.5 hour surgery I was told I had a menigioma brain tumor.   It was benign  but it  wrapped around my facial nerve and left my face almost completly paralyzed.  I had to endure reconstructive surgery and thankfully was able to regain some movement…

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Looking Back to Where I Got “The Call”

Sunday 11-27-16 My friend took me to a christmas performance downtown and We decided to have some lunch before heading home.  We tossed around a few places and she suggested Sauce.  I immediately thought of the location that used to be my office and was now converted to the restaurant.  There is a  BOFA  branch…

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The Night Before My First Brain Surgery – 18 Years Ago

18 yrs ago tonight I would await  my first brain surgery to take place bright and early in the morning.  Micheal and I  stayed at Hilton Suites  near the hospital to make sure we were set for success in the morning. That evening I sat writing notes & cards for all my friends & family…

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