Posts Tagged ‘brain tumor awareness’

Twenty year TUMORVERSARY

Today I celebrate 7300 days since my very first brain surgery ( I have had 5)! I have had some amazing days and my share of not so amazing days. The most important take away is I was given days others with brain cancer did not get. I don’t take that for granted.   So…

Read More

You learn who your friends are

I made a hospital brainbuddie visit.  The patient learned the GBM has possibly returned and  she needs surgery to determine if its treatment effect or tumor.   I brought a few goodies and some items to brighten the room.  I decorated the room engaged in conversation and then!    Bless her heart the tears and…

Read More

There was support! I was not alone.

It was my honeymoon weekend that we attend our first brain tumor support group together. It was the 2001 Florida Brain Tumor Association conference. In 2000 I attended a BT conference in CA. It caused me to want more. At that event, I heard this GBM survivor named David M Bailey sing a song called…

Read More

Stinky monkey feet

. My car has a leak UGH! Arrived at dealership checked in and started my wait. My “IF ONLY FOR ONE” begins. I see this little boy who I now know is Max. He was hanging out with his mom and her boyfriend. The room is large but filled with lots of customers ready to…

Read More

Students Create Campus Brain Tumor Awareness Campaign

May is Brain Cancer Awareness month & the Biotech Club at Red Mountain High school has teamed up with the Gray Matters Foundation to help STAMP out Brain Cancer.     The Gray Matters foundation is a nonprofit organization created to support and empower brain tumor patients and their loved ones through encouragement and personal outreach.…

Read More

Brain Buddie Survivor Story: John Van Wagner

My name is John Van Wagner and May 30th 1995 after an 8.5 hour surgery I was told I had a menigioma brain tumor.   It was benign  but it  wrapped around my facial nerve and left my face almost completly paralyzed.  I had to endure reconstructive surgery and thankfully was able to regain some movement…

Read More

Sheryl Shetsky aka BT DIVA founder of FBTA

  Today is about My friend, my Brain buddie, Sheryl Shetsky AKA BT DIVA.  She is a   survivor of almost 30 years  diagnosed with a CEREBELLUM BRAINSTEMGLIOMA in 1989.  She tells her story best so here is her link and it is a must read. http://www.floridabraintumor.com/about.htm Our friendship began when my husband and I…

Read More

David M. Bailey his story continues to share HOPE

David M Bailey my friend, my brain buddie, aka THE DYE HIPPIE FOLK SINGER , HOPE GUY I attached a link to his personal story if you haven’t taken the time to read you need to. DMB “My friend” I met him in 2000 at a NBTF event and after hearing him sing “ONE MORE…

Read More

30yr Medulloblastoma Survivor brainbuddie Steve Westerhoff

Today we want to tell you about Steve Westerhoff.  Steve is a 30 year survivor of Medulloblastoma.  He was diagnosed  in 1987 with a pediatric brain tumor while attending college.  He explains that being told he had a brain tumor caused some life changes.  Steve endured surgery and radiation down his spine.  He and his…

Read More

in memory of Beth Glassman ( ORIGINALLY POSTED 2008)

There are times in people’s lives when they hit the abyss. When things look so incredibly bleak and you feel that you will never dig yourself out. Last year I faced the abyss and Lanette, with her kindness and love and infectious spirit helped drag me out of the abyss, here is my story.

Read More