Posts Tagged ‘braintumorsstink’

Twenty year TUMORVERSARY

Today I celebrate 7300 days since my very first brain surgery ( I have had 5)! I have had some amazing days and my share of not so amazing days. The most important take away is I was given days others with brain cancer did not get. I don’t take that for granted.   So…

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Senator John McCain’s Death from Brain Tumor Triggers Sadness

After learning of Senator McCain’s passing yesterday, it triggered reflection and some sadness.  Let me explain. I love encouraging and sharing support. I believe it is what I was created to do, however this calling comes with a price. When you help those who are living with a disease that has no cure building relationships is…

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Warrior Ribbon

Wear your ribbons! Be a voice & talk about tumors. It’s May and that means it’s brain tumor awareness month. The ribbon in the photo is a ribbon my sweet BRAINGL CHRISTINA gave me while she battled. Her stepdad made it so we could share awareness in the neighborhood, we had matching ones.  Today it…

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Stinky monkey feet

. My car has a leak UGH! Arrived at dealership checked in and started my wait. My “IF ONLY FOR ONE” begins. I see this little boy who I now know is Max. He was hanging out with his mom and her boyfriend. The room is large but filled with lots of customers ready to…

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Keeping Record

If you have followed my journey, or if I have visited you on your journey you know I am an advocate for keeping your records. Having your medical information within reach is vital. I suggest creating 2 books one for you and a backup for a caregiver. Maintaining medical records makes it easier to provide…

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How Can You Help? Donate Stamps and Stickers

In an early blog we mentioned  Red Mtn Highschools Bio Tech club called Stem created a BRAIN TUMOR AWARENESS and fundraiser campaign for us.  We want to open this for Public participation. The Gray Matters foundation is a nonprofit organization created to support and empower brain tumor patients and their loved ones through encouragement and…

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Students Create Campus Brain Tumor Awareness Campaign

May is Brain Cancer Awareness month & the Biotech Club at Red Mountain High school has teamed up with the Gray Matters Foundation to help STAMP out Brain Cancer.     The Gray Matters foundation is a nonprofit organization created to support and empower brain tumor patients and their loved ones through encouragement and personal outreach.…

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Brain Buddie Survivor Story: John Van Wagner

My name is John Van Wagner and May 30th 1995 after an 8.5 hour surgery I was told I had a menigioma brain tumor.   It was benign  but it  wrapped around my facial nerve and left my face almost completly paralyzed.  I had to endure reconstructive surgery and thankfully was able to regain some movement…

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Lanette is a 2017 Hon Kachina Award Recipient

Congratulations to The Gray Matters Foundation’s own Lanette Veres a 2017 Hon Kachina Award Recipient! Presented in Phoenix, Arizona annually since 1977, the Hon – or healing – Kachina Volunteer Awards program is designed to honor people making significant volunteer contributions to the healthcare field and to increase public awareness about volunteerism. Out of 100 applicants, it is…

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