Posts Tagged ‘BTAM’

How Can You Help? Donate Stamps and Stickers

In an early blog we mentioned  Red Mtn Highschools Bio Tech club called Stem created a BRAIN TUMOR AWARENESS and fundraiser campaign for us.  We want to open this for Public participation. The Gray Matters foundation is a nonprofit organization created to support and empower brain tumor patients and their loved ones through encouragement and…

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Students Create Campus Brain Tumor Awareness Campaign

May is Brain Cancer Awareness month & the Biotech Club at Red Mountain High school has teamed up with the Gray Matters Foundation to help STAMP out Brain Cancer.     The Gray Matters foundation is a nonprofit organization created to support and empower brain tumor patients and their loved ones through encouragement and personal outreach.…

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Brain Buddie Survivor Story: John Van Wagner

My name is John Van Wagner and May 30th 1995 after an 8.5 hour surgery I was told I had a menigioma brain tumor.   It was benign  but it  wrapped around my facial nerve and left my face almost completly paralyzed.  I had to endure reconstructive surgery and thankfully was able to regain some movement…

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Banking, Bagels, and Brain Tumors

Banking Bagels and now Brain tumors.    Gene Snyder was my client,  my friend and now a brain buddie.   I met Gene when I worked at a bank.  We laugh now but it was not funny back then.  His very stern voice scared me.  Really the truth  he wanted you to know he meant…

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Sheryl Shetsky aka BT DIVA founder of FBTA

  Today is about My friend, my Brain buddie, Sheryl Shetsky AKA BT DIVA.  She is a   survivor of almost 30 years  diagnosed with a CEREBELLUM BRAINSTEMGLIOMA in 1989.  She tells her story best so here is her link and it is a must read. http://www.floridabraintumor.com/about.htm Our friendship began when my husband and I…

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David M. Bailey his story continues to share HOPE

David M Bailey my friend, my brain buddie, aka THE DYE HIPPIE FOLK SINGER , HOPE GUY I attached a link to his personal story if you haven’t taken the time to read you need to. DMB “My friend” I met him in 2000 at a NBTF event and after hearing him sing “ONE MORE…

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30yr Medulloblastoma Survivor brainbuddie Steve Westerhoff

Today we want to tell you about Steve Westerhoff.  Steve is a 30 year survivor of Medulloblastoma.  He was diagnosed  in 1987 with a pediatric brain tumor while attending college.  He explains that being told he had a brain tumor caused some life changes.  Steve endured surgery and radiation down his spine.  He and his…

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Grandma, the neurosurgeon, a tree and me…a story of coincidences and love

I’m so pleased to be given the opportunity to share this story in International Brain Tumour Alliance’s annual magazine, “Brain Tumour.” I got the chance to share this story about my neurosurgeon after sharing it in conversation. This is a story about a grandmother, a wonderful neurosurgeon, a tree and me… Click here to subscribe…

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Meet my friend Matthew Fullerton

Today I want you to know about my friend Matthew Fullerton. He will celebrate 30 years surviving GBM.  I think His tells his survival  story best here is that link https://virtualtrials.com/survivematt.cfm I met Matthew at an event in 2000 but would not really become friends until attending the Florida Brain Tumor conferences EVERY YEAR  from 2001…

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Carson is his name: baby to big boy BT SURVIVOR!

Baby Carson is the youngest GMFbrainbuddie.   His family and I  connected the very first time we met. The story started  when I watched CBS5 news and their pay it forward story. I then reached out to the family and started speaking with Carsons Uncle Nick. I shared how GMFoundation mission is to encourage and…

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