Posts Tagged ‘gbm’

Senator John McCain’s Death from Brain Tumor Triggers Sadness

After learning of Senator McCain’s passing yesterday, it triggered reflection and some sadness.  Let me explain. I love encouraging and sharing support. I believe it is what I was created to do, however this calling comes with a price. When you help those who are living with a disease that has no cure building relationships is…

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There was support! I was not alone.

It was my honeymoon weekend that we attend our first brain tumor support group together. It was the 2001 Florida Brain Tumor Association conference. In 2000 I attended a BT conference in CA. It caused me to want more. At that event, I heard this GBM survivor named David M Bailey sing a song called…

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David M. Bailey his story continues to share HOPE

David M Bailey my friend, my brain buddie, aka THE DYE HIPPIE FOLK SINGER , HOPE GUY I attached a link to his personal story if you haven’t taken the time to read you need to. DMB “My friend” I met him in 2000 at a NBTF event and after hearing him sing “ONE MORE…

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in memory of Beth Glassman ( ORIGINALLY POSTED 2008)

There are times in people’s lives when they hit the abyss. When things look so incredibly bleak and you feel that you will never dig yourself out. Last year I faced the abyss and Lanette, with her kindness and love and infectious spirit helped drag me out of the abyss, here is my story.

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Jack Orler is his name

I met a lady while volunteering on the Pediatric Ride for kids. This was over 15 years now.  She  asked if I spoke to families with adults that had brain tumors.   I said of course and the story began.  She asked if I would reach out to her hair dresser who was just diagnosed…

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Meet my friend Matthew Fullerton

Today I want you to know about my friend Matthew Fullerton. He will celebrate 30 years surviving GBM.  I think His tells his survival  story best here is that link https://virtualtrials.com/survivematt.cfm I met Matthew at an event in 2000 but would not really become friends until attending the Florida Brain Tumor conferences EVERY YEAR  from 2001…

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Kris from TAMPA

Kris is her name and  Tom  was her husband.  I never met Tom in person but I did through Kris.  You see a loved one can always be kept alive in memory if you share their story.  Kris shared his story and Tom is part of the journey.  Caregiver journeys are part of the awareness…

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Brain Buddie Gives Back: Way To Go, Flo!

Flo “GBM SURVIVOR” is a Brain Buddie who jumped right in to help and give back. She is one of my biggest fans. Flo is not shy about telling anyone and everyone about Gray Matters. I met her at the local AZ support group I facilitate. Flo is a giving soul and was eager to…

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