Posts Tagged ‘glioblastoma’

19 Years Ago Brain Surgery Began

It was the morning of 9-2-98 Micheal drove me to Barrow and we checked in to pre-op. Some things you never forget.  My dad had given me a shirt that said don’t forget your dad loves you and it had his photo on the front so I made sure I was wearing that so he…

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Iris W Kirk Gone 24yrs and Missed More Than Ever

Today is a bitter sweet TONGUESATTUMORS TUESDAY it marks 24yrs since I watched my grandma’s death by a brain tumor. It would be her passing from such a horrific disease that would spark my passion to be a voice for the BT cause. The bigger piece to this moment in time would be- 24 years…

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Banking, Bagels, and Brain Tumors

Banking Bagels and now Brain tumors.    Gene Snyder was my client,  my friend and now a brain buddie.   I met Gene when I worked at a bank.  We laugh now but it was not funny back then.  His very stern voice scared me.  Really the truth  he wanted you to know he meant…

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David M. Bailey his story continues to share HOPE

David M Bailey my friend, my brain buddie, aka THE DYE HIPPIE FOLK SINGER , HOPE GUY I attached a link to his personal story if you haven’t taken the time to read you need to. DMB “My friend” I met him in 2000 at a NBTF event and after hearing him sing “ONE MORE…

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in memory of Beth Glassman ( ORIGINALLY POSTED 2008)

There are times in people’s lives when they hit the abyss. When things look so incredibly bleak and you feel that you will never dig yourself out. Last year I faced the abyss and Lanette, with her kindness and love and infectious spirit helped drag me out of the abyss, here is my story.

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AZ ANGEL ADVENTURE 2005 Gray Matters Team

Team Gray Matters “without your brain it doesn’t matter”  my first tag line and  fundraising page for the 2005 NBTF walk. Hard to believe it has been over 10 years.            The NBTF now NBTS ” AZ”  Angel Adventure walk was originally formed with  volunteers from Standard Insurance, their Manager Sue…

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Jack Orler is his name

I met a lady while volunteering on the Pediatric Ride for kids. This was over 15 years now.  She  asked if I spoke to families with adults that had brain tumors.   I said of course and the story began.  She asked if I would reach out to her hair dresser who was just diagnosed…

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Meet my friend Matthew Fullerton

Today I want you to know about my friend Matthew Fullerton. He will celebrate 30 years surviving GBM.  I think His tells his survival  story best here is that link https://virtualtrials.com/survivematt.cfm I met Matthew at an event in 2000 but would not really become friends until attending the Florida Brain Tumor conferences EVERY YEAR  from 2001…

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Kris from TAMPA

Kris is her name and  Tom  was her husband.  I never met Tom in person but I did through Kris.  You see a loved one can always be kept alive in memory if you share their story.  Kris shared his story and Tom is part of the journey.  Caregiver journeys are part of the awareness…

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You mean I was not the only one?

Lanette’s Little Bit’s I attended my very first conference in California hosted by the National Brain Tumor Foundation in 2000.  ( NBTF is now NBTS they merged a few years back)  It was a whole weekend filled of information.  I arrived on Friday morning and Friday evening it began.  They had an introduction and explanation…

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