Posts Tagged ‘glioblastoma’

Senator John McCain’s Death from Brain Tumor Triggers Sadness

After learning of Senator McCain’s passing yesterday, it triggered reflection and some sadness.  Let me explain. I love encouraging and sharing support. I believe it is what I was created to do, however this calling comes with a price. When you help those who are living with a disease that has no cure building relationships is…

Read More

You learn who your friends are

I made a hospital brainbuddie visit.  The patient learned the GBM has possibly returned and  she needs surgery to determine if its treatment effect or tumor.   I brought a few goodies and some items to brighten the room.  I decorated the room engaged in conversation and then!    Bless her heart the tears and…

Read More

19 Years Ago Brain Surgery Began

It was the morning of 9-2-98 Micheal drove me to Barrow and we checked in to pre-op. Some things you never forget.  My dad had given me a shirt that said don’t forget your dad loves you and it had his photo on the front so I made sure I was wearing that so he…

Read More

Iris W Kirk Gone 24yrs and Missed More Than Ever

Today is a bitter sweet TONGUESATTUMORS TUESDAY it marks 24yrs since I watched my grandma’s death by a brain tumor. It would be her passing from such a horrific disease that would spark my passion to be a voice for the BT cause. The bigger piece to this moment in time would be- 24 years…

Read More

Banking, Bagels, and Brain Tumors

Banking Bagels and now Brain tumors.    Gene Snyder was my client,  my friend and now a brain buddie.   I met Gene when I worked at a bank.  We laugh now but it was not funny back then.  His very stern voice scared me.  Really the truth  he wanted you to know he meant…

Read More

David M. Bailey his story continues to share HOPE

David M Bailey my friend, my brain buddie, aka THE DYE HIPPIE FOLK SINGER , HOPE GUY I attached a link to his personal story if you haven’t taken the time to read you need to. DMB “My friend” I met him in 2000 at a NBTF event and after hearing him sing “ONE MORE…

Read More

in memory of Beth Glassman ( ORIGINALLY POSTED 2008)

There are times in people’s lives when they hit the abyss. When things look so incredibly bleak and you feel that you will never dig yourself out. Last year I faced the abyss and Lanette, with her kindness and love and infectious spirit helped drag me out of the abyss, here is my story.

Read More

AZ ANGEL ADVENTURE 2005 Gray Matters Team

Team Gray Matters “without your brain it doesn’t matter”  my first tag line and  fundraising page for the 2005 NBTF walk. Hard to believe it has been over 10 years.            The NBTF now NBTS ” AZ”  Angel Adventure walk was originally formed with  volunteers from Standard Insurance, their Manager Sue…

Read More

Jack Orler is his name

I met a lady while volunteering on the Pediatric Ride for kids. This was over 15 years now.  She  asked if I spoke to families with adults that had brain tumors.   I said of course and the story began.  She asked if I would reach out to her hair dresser who was just diagnosed…

Read More

Meet my friend Matthew Fullerton

Today I want you to know about my friend Matthew Fullerton. He will celebrate 30 years surviving GBM.  I think His tells his survival  story best here is that link https://virtualtrials.com/survivematt.cfm I met Matthew at an event in 2000 but would not really become friends until attending the Florida Brain Tumor conferences EVERY YEAR  from 2001…

Read More