Posts Tagged ‘gmfbrainbuddies’

Brain Buddie Survivor Story: John Van Wagner

My name is John Van Wagner and May 30th 1995 after an 8.5 hour surgery I was told I had a menigioma brain tumor.   It was benign  but it  wrapped around my facial nerve and left my face almost completly paralyzed.  I had to endure reconstructive surgery and thankfully was able to regain some movement…

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Looking Back to Where I Got “The Call”

Sunday 11-27-16 My friend took me to a christmas performance downtown and We decided to have some lunch before heading home.  We tossed around a few places and she suggested Sauce.  I immediately thought of the location that used to be my office and was now converted to the restaurant.  There is a  BOFA  branch…

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The Night Before My First Brain Surgery – 18 Years Ago

18 yrs ago tonight I would await  my first brain surgery to take place bright and early in the morning.  Micheal and I  stayed at Hilton Suites  near the hospital to make sure we were set for success in the morning. That evening I sat writing notes & cards for all my friends & family…

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Banking, Bagels, and Brain Tumors

Banking Bagels and now Brain tumors.    Gene Snyder was my client,  my friend and now a brain buddie.   I met Gene when I worked at a bank.  We laugh now but it was not funny back then.  His very stern voice scared me.  Really the truth  he wanted you to know he meant…

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David M. Bailey his story continues to share HOPE

David M Bailey my friend, my brain buddie, aka THE DYE HIPPIE FOLK SINGER , HOPE GUY I attached a link to his personal story if you haven’t taken the time to read you need to. DMB “My friend” I met him in 2000 at a NBTF event and after hearing him sing “ONE MORE…

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30yr Medulloblastoma Survivor brainbuddie Steve Westerhoff

Today we want to tell you about Steve Westerhoff.  Steve is a 30 year survivor of Medulloblastoma.  He was diagnosed  in 1987 with a pediatric brain tumor while attending college.  He explains that being told he had a brain tumor caused some life changes.  Steve endured surgery and radiation down his spine.  He and his…

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in memory of Beth Glassman ( ORIGINALLY POSTED 2008)

There are times in people’s lives when they hit the abyss. When things look so incredibly bleak and you feel that you will never dig yourself out. Last year I faced the abyss and Lanette, with her kindness and love and infectious spirit helped drag me out of the abyss, here is my story.

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Jack Orler is his name

I met a lady while volunteering on the Pediatric Ride for kids. This was over 15 years now.  She  asked if I spoke to families with adults that had brain tumors.   I said of course and the story began.  She asked if I would reach out to her hair dresser who was just diagnosed…

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Meet my friend Matthew Fullerton

Today I want you to know about my friend Matthew Fullerton. He will celebrate 30 years surviving GBM.  I think His tells his survival  story best here is that link https://virtualtrials.com/survivematt.cfm I met Matthew at an event in 2000 but would not really become friends until attending the Florida Brain Tumor conferences EVERY YEAR  from 2001…

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Carson is his name: baby to big boy BT SURVIVOR!

Baby Carson is the youngest GMFbrainbuddie.   His family and I  connected the very first time we met. The story started  when I watched CBS5 news and their pay it forward story. I then reached out to the family and started speaking with Carsons Uncle Nick. I shared how GMFoundation mission is to encourage and…

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