Posts Tagged ‘Gray Matters Foundation’

What We Do Wednesday

#whatwedowednesday Part of our mission is to encourage those battling brain tumors. One way we do this is after surgery Lanette personally delivers a blanket. If you don’t live locally we put together a personalized box of goodies to create a smile and send your way. Look at a donation we received to help with…

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Sheryl Shetsky aka BT DIVA founder of FBTA

  Today is about My friend, my Brain buddie, Sheryl Shetsky AKA BT DIVA.  She is a   survivor of almost 30 years  diagnosed with a CEREBELLUM BRAINSTEMGLIOMA in 1989.  She tells her story best so here is her link and it is a must read. http://www.floridabraintumor.com/about.htm Our friendship began when my husband and I…

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David M. Bailey his story continues to share HOPE

David M Bailey my friend, my brain buddie, aka THE DYE HIPPIE FOLK SINGER , HOPE GUY I attached a link to his personal story if you haven’t taken the time to read you need to. DMB “My friend” I met him in 2000 at a NBTF event and after hearing him sing “ONE MORE…

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30yr Medulloblastoma Survivor brainbuddie Steve Westerhoff

Today we want to tell you about Steve Westerhoff.  Steve is a 30 year survivor of Medulloblastoma.  He was diagnosed  in 1987 with a pediatric brain tumor while attending college.  He explains that being told he had a brain tumor caused some life changes.  Steve endured surgery and radiation down his spine.  He and his…

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AZ ANGEL ADVENTURE 2005 Gray Matters Team

Team Gray Matters “without your brain it doesn’t matter”  my first tag line and  fundraising page for the 2005 NBTF walk. Hard to believe it has been over 10 years.            The NBTF now NBTS ” AZ”  Angel Adventure walk was originally formed with  volunteers from Standard Insurance, their Manager Sue…

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Jack Orler is his name

I met a lady while volunteering on the Pediatric Ride for kids. This was over 15 years now.  She  asked if I spoke to families with adults that had brain tumors.   I said of course and the story began.  She asked if I would reach out to her hair dresser who was just diagnosed…

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Meet my friend Matthew Fullerton

Today I want you to know about my friend Matthew Fullerton. He will celebrate 30 years surviving GBM.  I think His tells his survival  story best here is that link https://virtualtrials.com/survivematt.cfm I met Matthew at an event in 2000 but would not really become friends until attending the Florida Brain Tumor conferences EVERY YEAR  from 2001…

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Corporate GMFBRAINBUDDIE Fitness Institute of Arrowhead

​Today we want to tell you about one of our #CorporateGMFbrainbuddies. We met @GregTrevesio and his company @FitnessInstituteofArrowhead when he came highly recommended as a personal trainor by our doctor.  I hired him as a personal trainor for my son.  We have known Greg for just about ten years.   Over the ten years I…

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Kris from TAMPA

Kris is her name and  Tom  was her husband.  I never met Tom in person but I did through Kris.  You see a loved one can always be kept alive in memory if you share their story.  Kris shared his story and Tom is part of the journey.  Caregiver journeys are part of the awareness…

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You mean I was not the only one?

Lanette’s Little Bit’s I attended my very first conference in California hosted by the National Brain Tumor Foundation in 2000.  ( NBTF is now NBTS they merged a few years back)  It was a whole weekend filled of information.  I arrived on Friday morning and Friday evening it began.  They had an introduction and explanation…

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