Posts Tagged ‘Gray Matters Foundation’

Lanette is a 2017 Hon Kachina Award Recipient

Congratulations to The Gray Matters Foundation’s own Lanette Veres a 2017 Hon Kachina Award Recipient! Presented in Phoenix, Arizona annually since 1977, the Hon – or healing – Kachina Volunteer Awards program is designed to honor people making significant volunteer contributions to the healthcare field and to increase public awareness about volunteerism. Out of 100 applicants, it is…

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Looking Back to Where I Got “The Call”

Sunday 11-27-16 My friend took me to a christmas performance downtown and We decided to have some lunch before heading home.  We tossed around a few places and she suggested Sauce.  I immediately thought of the location that used to be my office and was now converted to the restaurant.  There is a  BOFA  branch…

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Iris W Kirk Gone 24yrs and Missed More Than Ever

Today is a bitter sweet TONGUESATTUMORS TUESDAY it marks 24yrs since I watched my grandma’s death by a brain tumor. It would be her passing from such a horrific disease that would spark my passion to be a voice for the BT cause. The bigger piece to this moment in time would be- 24 years…

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What We Do Wednesday

#whatwedowednesday Part of our mission is to encourage those battling brain tumors. One way we do this is after surgery Lanette personally delivers a blanket. If you don’t live locally we put together a personalized box of goodies to create a smile and send your way. Look at a donation we received to help with…

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Sheryl Shetsky aka BT DIVA founder of FBTA

  Today is about My friend, my Brain buddie, Sheryl Shetsky AKA BT DIVA.  She is a   survivor of almost 30 years  diagnosed with a CEREBELLUM BRAINSTEMGLIOMA in 1989.  She tells her story best so here is her link and it is a must read. http://www.floridabraintumor.com/about.htm Our friendship began when my husband and I…

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David M. Bailey his story continues to share HOPE

David M Bailey my friend, my brain buddie, aka THE DYE HIPPIE FOLK SINGER , HOPE GUY I attached a link to his personal story if you haven’t taken the time to read you need to. DMB “My friend” I met him in 2000 at a NBTF event and after hearing him sing “ONE MORE…

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30yr Medulloblastoma Survivor brainbuddie Steve Westerhoff

Today we want to tell you about Steve Westerhoff.  Steve is a 30 year survivor of Medulloblastoma.  He was diagnosed  in 1987 with a pediatric brain tumor while attending college.  He explains that being told he had a brain tumor caused some life changes.  Steve endured surgery and radiation down his spine.  He and his…

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AZ ANGEL ADVENTURE 2005 Gray Matters Team

Team Gray Matters “without your brain it doesn’t matter”  my first tag line and  fundraising page for the 2005 NBTF walk. Hard to believe it has been over 10 years.            The NBTF now NBTS ” AZ”  Angel Adventure walk was originally formed with  volunteers from Standard Insurance, their Manager Sue…

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Jack Orler is his name

I met a lady while volunteering on the Pediatric Ride for kids. This was over 15 years now.  She  asked if I spoke to families with adults that had brain tumors.   I said of course and the story began.  She asked if I would reach out to her hair dresser who was just diagnosed…

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Meet my friend Matthew Fullerton

Today I want you to know about my friend Matthew Fullerton. He will celebrate 30 years surviving GBM.  I think His tells his survival  story best here is that link https://virtualtrials.com/survivematt.cfm I met Matthew at an event in 2000 but would not really become friends until attending the Florida Brain Tumor conferences EVERY YEAR  from 2001…

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