Posts Tagged ‘sharehope’

Twenty year TUMORVERSARY

Today I celebrate 7300 days since my very first brain surgery ( I have had 5)! I have had some amazing days and my share of not so amazing days. The most important take away is I was given days others with brain cancer did not get. I don’t take that for granted.   So…

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Senator John McCain’s Death from Brain Tumor Triggers Sadness

After learning of Senator McCain’s passing yesterday, it triggered reflection and some sadness.  Let me explain. I love encouraging and sharing support. I believe it is what I was created to do, however this calling comes with a price. When you help those who are living with a disease that has no cure building relationships is…

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There was support! I was not alone.

It was my honeymoon weekend that we attend our first brain tumor support group together. It was the 2001 Florida Brain Tumor Association conference. In 2000 I attended a BT conference in CA. It caused me to want more. At that event, I heard this GBM survivor named David M Bailey sing a song called…

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19 Years Ago Brain Surgery Began

It was the morning of 9-2-98 Micheal drove me to Barrow and we checked in to pre-op. Some things you never forget.  My dad had given me a shirt that said don’t forget your dad loves you and it had his photo on the front so I made sure I was wearing that so he…

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Brain Buddie Survivor Story: John Van Wagner

My name is John Van Wagner and May 30th 1995 after an 8.5 hour surgery I was told I had a menigioma brain tumor.   It was benign  but it  wrapped around my facial nerve and left my face almost completly paralyzed.  I had to endure reconstructive surgery and thankfully was able to regain some movement…

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David M. Bailey his story continues to share HOPE

David M Bailey my friend, my brain buddie, aka THE DYE HIPPIE FOLK SINGER , HOPE GUY I attached a link to his personal story if you haven’t taken the time to read you need to. DMB “My friend” I met him in 2000 at a NBTF event and after hearing him sing “ONE MORE…

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Kris from TAMPA

Kris is her name and  Tom  was her husband.  I never met Tom in person but I did through Kris.  You see a loved one can always be kept alive in memory if you share their story.  Kris shared his story and Tom is part of the journey.  Caregiver journeys are part of the awareness…

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#drinkonefordavid

I write this post to wish my beloved brain buddie  a HAPPY 50th BIRTHDAY.  A recent post on his fan page encouraged followers to share stories of times you may have shared a cup of coffee with david.  This sparked an idea to celebrate his life lived. Perfect I thought it’s his birthday and a…

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