Posts by Lanette

My Experience as a Participant in the AACR Scientist↔Survivor Program

This March I had the opportunity to attend the AACR (American Association for Cancer Research) Annual Meeting as a participant in the Scientist↔Survivor Program. As a 20 year brain tumor survivor, I have spent the better part of the last two decades supporting and educating those affected by brain tumors. Being accepted into the SSP…

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11th Annual Gray Matters Foundation Night at Chase Field

LET’S PLAY BALL! Join us for our 11th Annual Arizona Diamondbacks game fundraiser! We have great Lower Level, Bullpen Reserve seats available for just $20 per ticket. About the Game Tuesday, May 14, 2019 @ 6:40pmArizona Diamondbacks VS  Pittsburgh Pirates Chase Field401 E Jefferson StPhoenix, AZ 85004 TICKET SALES ARE NOW CLOSED Reserve Tickets Purchase…

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The Scar

“Scars are history written on your body.”   This photo was taken in 2002.  It was post surgery 3 & 4.  A year after this the tumor returned near my brain stem and surgery was no longer an option so I did 6wks of radiation and chemo by pill for 1 year.   2007 I…

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Twenty year TUMORVERSARY

Today I celebrate 7300 days since my very first brain surgery ( I have had 5)! I have had some amazing days and my share of not so amazing days. The most important take away is I was given days others with brain cancer did not get. I don’t take that for granted.   So…

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Senator John McCain’s Death from Brain Tumor Triggers Sadness

After learning of Senator McCain’s passing yesterday, it triggered reflection and some sadness.  Let me explain. I love encouraging and sharing support. I believe it is what I was created to do, however this calling comes with a price. When you help those who are living with a disease that has no cure building relationships is…

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You learn who your friends are

I made a hospital brainbuddie visit.  The patient learned the GBM has possibly returned and  she needs surgery to determine if its treatment effect or tumor.   I brought a few goodies and some items to brighten the room.  I decorated the room engaged in conversation and then!    Bless her heart the tears and…

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Warrior Ribbon

Wear your ribbons! Be a voice & talk about tumors. It’s May and that means it’s brain tumor awareness month. The ribbon in the photo is a ribbon my sweet BRAINGL CHRISTINA gave me while she battled. Her stepdad made it so we could share awareness in the neighborhood, we had matching ones.  Today it…

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3rd Annual Java Junkie Celebration at Dutch Bros

You have may have heard me talk about my dear friend David M. Bailey – The Java Junkie. David was a celebrated musician, coffee lover, and brain cancer survivor. David was diagnosed with the worst type of brain cancer – Glioblastoma (GBM) – and was given only a weeks to live. David, however wasn’t going to…

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Happy Heart’s Day

Happy Hearts Day Brain Buddies! February 14th represents a day of love and I always loved making it a special day for my kids growing up with little notes and fun activities. I feel like everyone celebrates Christmas or Hanukkah or the New Year but no one really, I mean really celebrates “Happy Hearts Day!”. To…

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There was support! I was not alone.

It was my honeymoon weekend that we attend our first brain tumor support group together. It was the 2001 Florida Brain Tumor Association conference. In 2000 I attended a BT conference in CA. It caused me to want more. At that event, I heard this GBM survivor named David M Bailey sing a song called…

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